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New Rare Disease Education for Healthcare Professionals Partnership

NORD and Frontline Medical Communications have announced a strategic alliance to increase awareness and understanding of rare diseases. Read the press release >


View Webcast of Energy & Commerce Hearing

Dr. Marshall Summar of NORD and others provided the patient perspective in 21st Century Cures hearing. Read Dr. Summar's testimony


NORD President's Letter is Published in The New Yorker

Read a letter from Peter L. Saltonstall regarding a recent article on a family's incredible journey seeking a diagnosis. More >


NORD Provides Input to 21st Century Cures Initiative

NORD has provided recommendations and testimony to advance the discovery, development, and delivery of treatments. More >



Rally for Medical Research

NORD is participating in the 2014 Rally for Medical Research Capitol Hill Day on Sept 18 in Washington, DC. More >


International Conference on Rare Diseases and Orphan Drugs (ICORD)

The 9th ICORD meeting will take place in the Netherlands, October 7-9. More >


Two Patient-Focused Drug Development Meetings Announced

FDA will host a public meeting on patient-focused drug development for heritable bleeding disorders on Sept 22, and a meeting on idiopathic pulmonary fibrosis on Sept 26. More here and here>


2014 Global Pediatric Innovation Summit

Boston Children's Hospital will host its 2nd annual pediatric innovation summit October 30-31, 2014 in Boston. More >


The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases. More >

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