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Rare Disease Day Printable Handouts and Resources

Check out the newly added printable coloring handouts and other resources for Rare Disease Day. For more information, visit the Rare Disease Day website here.

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Sean Hepburn Ferrer Partners with NORD and EURORDIS

Son of actress Audrey Hepburn donates proceeds from new book and serves as Rare Disease Day® Ambassador 2015 on February 28. More>

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NORD Announces #1in10 Campaign to Raise Awareness

NORD announces a new social media campaign, #1in10, to raise awareness for the 1 in 10 Americans living with a rare disease. More>

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NORD Issues Statement on Departure of FDA Commissioner Margaret Hamburg

NORD has issued a statement following the announcement FDA Commissioner Margaret Hamburg, M.D., will leave her job at the end of March. More>

Events

NORD's Timeline of Major Milestones

NORD's timeline of major milestones captures the driving progress on behalf of rare disease patients. More >

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CORD's 3rd Annual Rarity Awards

The 3rd Annual Rarity Awards will recognize those with outstanding commitment toward overcoming challenges of rare diseases. The deadline is February 1st. More >

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Rare Disease Day: February 28, 2015

NORD is the official U.S. sponsor of this one-of-a-kind day that brings together communities from around the world to raise awareness about rare diseases. More >

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The Genzyme Running for Rare Diseases Marathon Team

The team is training now to raise money for NORD's assistance program for patients applying to the NIH Undiagnosed Diseases Program. More >

WHAT IS NORD?

The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases. More >

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