Contact Us

National Organization
for Rare Disorders

55 Kenosia Avenue

PO Box 1968

Danbury, CT 06813-1968

CT Phone:

(203) 744-0100

Toll Free:

(800) 999-6673

(voicemail only)

CT Fax:

(203) 798-2291

TDD:

(203) 797-9590

NORD Washington Office

1779 Massachusetts Avenue

Suite 500

Washington, DC 20036

DC Phone:

(202) 588-5700

DC Fax:

(202) 588-5701

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Please select an option from the subject menu. If you have a question that isn't part of the list, choose "My question isn't listed" from the menu. We will try to respond by email as soon as we can. If you want to speak with someone at NORD, please use the numbers listed on our website.

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Please note that NORD does not provide clinical services and staff are not able to assist in making a diagnosis.