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Policy Documents

2005-Enzi
testimony-nord
testimony-campbell
orphan-research.pdf
statement-dorman
statement-dorman
2005-wiley
2005-meyers
senate-help
workshop-ultra-rare
roscoe-tribute
special-emphasis-panel
orphan-dev-conf
patient-perspective
collaboration-pharma
history-orphan-drug-act
orgs-orphan-drug-act
testimony-2003-dorman
pdufa-2001
stem-cell
fda-modernization
generics-conf
gene-therapy
ssa-commissioner
priority-orphans
nih-research
gene-patenting
insurance-drugs
genetic-discrimination
patients-rights
patient-trials
AAPDAmicusBrief.pdf
dorman-7-10
dorman-6-10
dorman-7-10
fda-6-10
mdufa-ppt
FDA5312011.pdf
cms-tiers-2011
2011 NIH Dear Colleague
fda-pdac-2011
medicare-cuts-2011
pcori-7-2011
citizen-petition
health-funding-2011
alliance-9-2011
shuren-risk
mullin-risk
cdrh-risk-2011
nord-study-fda-approval
nih-2012-funding
maprx-2011
help-2011
NIHFY2012HouseSignonLetterDraft.pdf
copy_of_MAPRxSuperCommitteeLetter10.12.11.pdf
HELP COI Letter_Senate_Final.pdf
testimony-10-24-2011
Letter to OHRP
ohrp-2011-nwe
Ultra Orphan Act
NORD Ultra Response
pdufa12012.pdf
crec-2012
compassionate-allowances-101
aplus-2012
ssa-teleconference-2012
Fast Act
Policy Statement Fast-Treat Acts
HDE Reforms
HDE Pag Letter 2012
Pediatric Device Letter
Final Pediatric Device Letter
Harkin Enzi 2012
bpca-prea-2012
hde-pag-letter
ehb-letter-2012
Letter to House Officials 5-2012
bass-2012-statement
fda-peripheral-may-2012
fda-risk-summary
webinar-7-2012
webinar-7-2012-audio
ACA SCOTUS 2012
pediatric-rogers
pediatric-brown
Zallen Letter
Sequestration Letter
lhhs-2012-signon
clia-letter-2012
patient-focused-comments-2012
CLIA-2012-signatures
Dec 6 Saltonstall SSA
medical-device-consortium
NORD PCORI 2012
MAPRx-2012
MAPRx-congress-2012
saltonstall-2013-oda
newborn-screening
testimony-dorman-2013
AHRQ Letter 2013

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