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Policy Documents

bpca-ped-2012
Newborn Screening Letter 2013
Risk Benefit Letter-2013
pcip-2013
pdufa-2013
pdufa-saltonstall-comments
newborn-screening-2013
Compassionate Allowances Sign On 2013
SSA Compassionate Allowances Sign-On July-2013
CA Letter July 2013
Sign On Letter July 2013
final-signon-2013-july-ssa
ssa-signon-2013
Orphan Drug Tax Credit 2013
tax-credit-letter
od-tax-letter-july31
I-am-Essential
expedited-approval-2013
sos-lance
pryor-ty
toomey-ty
gerlach-ty
access-2013
gov-shutdown-letter
shutdown-wnames
shutdown-final-wnames
shutdown-letter-10-14
Medical Foods Comments
shutdown-10-21
maprx-2014
diane-testimony-2013
adcomm-2013-dorman
sebelius-2013
Budget Conference Committee Letter
budget-cmte-letter
medicare-10year
pediatric-ty-2013
FDA-FY14
adcomm-fda
JAMA Letter 2014
Medicare Part C and D
RDD 2014 Congressional Letter
RDD 2014 State Officials
Save the ODTC 2014
302B Letter 2014
Orphan Drug Tax Credit Updated Letter
Thank You Letter to Gov O'Malley for Passage of HB761
newborn-screening-2014
cc
Petition in Support of the Patients' Access to Treatments Act
Practice
Expanded Access to Investigational Pharmaceuticals
NORD Backgrounder on Expanded Access with Senate Briefing
NORD backgrounder on Expanded Access prepared in conjunction with Senate briefing on this topic on Sept. 10, 2014.
Slides from Senate Briefing on Expanded Access
Letter to MedPAC
Letter to Commissioner Hamburg and FDA
Congressional Omnibus Ask Revised 101714
BioCentury
Save the Newborn Screening Act
NORD Supports the Newborn Screening Saves Lives Reauthorization Act

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