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Thank You Letter to Gov. Jindal
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Webinar: Diagnosis and Early Management of Scleroderma Aug 21, 2014 from 11:00 AM to 12:00 PM Online ,
This next webinar in the series hosted by The Scleroderma Research Foundation will be Aug. 21, 2014 from 10:00AM-11:00AM.
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Conference 2014
2014 FOD/OAA National Metabolic Family Conference from Jul 25, 2014 09:00 AM to Jul 26, 2014 06:00 PM 1700 Jefferson Davis Highway Arlington VA 22202,
The FOD Family Support Group will be held July 25-26 at the Crystal Gateway Marriott in Arlington, VA.
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June 2014 eNews
Joyce Niblack Memorial Conference on Myeloproliferative Neoplasms from Feb 19, 2015 01:00 AM to Feb 22, 2015 01:00 AM Scottsdale, AZ,
The MPN Education Foundation and the Mayo Clinic are hosting this patient-doctor conference in Scottsdale, AZ Feb 21-22, 2015.
11th Moebius Syndrome Conference from Jul 18, 2014 01:00 AM to Jul 20, 2014 01:00 AM North Bethesda, MD,
The 11th Moebius Syndrome Conference will be held July 18-20 in North Bethesda, MD.
14th International Fragile X Conference from Jul 16, 2014 01:00 AM to Jul 20, 2014 01:00 AM Orange County, CA,
The 14th International Fragile X Conference will be held July 16-20 in Orange County, CA.
2nd Annual International ECD Medical Symposium from Sep 17, 2014 07:00 PM to Sep 19, 2014 02:00 PM Double Tree Hotel 8120 Wisconsin Avenue Bethesda, MD 20814,
The 2nd Annual International ECD Medical Symposium is scheduled for September 17-19 in Bethesda, Maryland.
Ehlers-Danlos National Foundation CME Program Sep 15, 2014 from 01:00 AM to 10:35 AM Baltimore, MD,
The EDNF Center for Clinical Care and Research at Greater Baltimore Medical Center will host a CME program for physicians on Sept 15.
June 2014 eNews
Conference 2014
Immune tolerance induction in ERT to treat infantile-onset Pompe disease: Current practice (Final Version)

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