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2nd Annual International ECD Medical Symposium from Sep 17, 2014 07:00 PM to Sep 19, 2014 02:00 PM Double Tree Hotel 8120 Wisconsin Avenue Bethesda, MD 20814,
The 2nd Annual International ECD Medical Symposium is scheduled for September 17-19 in Bethesda, Maryland.
Ehlers-Danlos National Foundation CME Program Sep 15, 2014 from 01:00 AM to 10:35 AM Baltimore, MD,
The EDNF Center for Clinical Care and Research at Greater Baltimore Medical Center will host a CME program for physicians on Sept 15.
June 2014 eNews
Conference 2014
Immune tolerance induction in ERT to treat infantile-onset Pompe disease: Current practice (Final Version)
ACDMPV-RFP-2014
POT-RFP-2014
APS-Type-1-RFP-2014
PMP-RFP-2014
Immune tolerance induction in ERT to treat infantile-onset Pompe disease: Current practice
FOOD AND DRUG ADMINISTRATION (FDA) Center for Drug Evaluation and Research (CDER) Agenda
fda-agenda
Non-Cytotoxic, Non-Immunosuppressing Approach to Tolerance Induction During ERT Treatment
Pharmacologic Approaches for Immune Tolerance
Assessing immunogenicity during clinical development: – An Industry Perspective
Anti-Drug Antibodies in Patients with Lysosomal Storage Disorders (LSD’s): Clinician’s Perspective
Immune Responses and the Role of Immune Tolerance Induction in Enzyme Replacement Therapies for Lysosomal Storage Diseases: the FDA Perspective
Role of Immune Tolerance Induction Public Workshop
Thank You Letter to Gov O'Malley for Passage of HB761
NORD URGES FDA TO CONSIDER RARE DISEASE TREATMENT IMPLICATIONS WHEN SETTING BIOLOGICS NAMING POLICY
In a letter submitted today to FDA, NORD urged Commissioner Hamburg to give serious consideration to the concerns of the rare disease community when setting policy regarding official names for biologics, including biosimilars.

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