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FDA Blog Highlights NORD Registry

A blog by FDA senior official Dr. Janet Woodcock highlights NORD's new patient registry/natural history tool. Read the blog here >

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Rare Disease Registries: Involve the Patient

Marshall Summar, MD, explains how patient registries can accelerate treatment and help close knowledge gaps about patients' daily experiences.   More >

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BioCentury Article Highlights NORD Resource

NORD resource cited as model for how patient organizations can generate natural history data. More >

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NORD Awards New Grants for Rare Disease Research

Throughout its 26-year history, NORD’s research grant program has administered more than 150 grants. More >

Events

NORD's Timeline of Major Milestones

NORD's timeline of major milestones captures the driving progress on behalf of rare disease patients. More >

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CORD's 3rd Annual Rarity Awards

The 3rd Annual Rarity Awards will recognize those with outstanding commitment toward overcoming challenges of rare diseases. The deadline is February 1st. More >

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Rare Disease Day: February 28, 2015

NORD is the official U.S. sponsor of this one-of-a-kind day that brings together communities from around the world to raise awareness about rare diseases. More >

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The Genzyme Running for Rare Diseases Marathon Team

The team is training now to raise money for NORD's assistance program for patients applying to the NIH Undiagnosed Diseases Program. More >

WHAT IS NORD?

The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases. More >

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