Disease Information from NORD, National Organization for Rare Disorders, Inc.

The National Organization for Rare Disorders (NORD)

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• Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,200 diseases.

• Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

• Rare Disease Database

Search this database for reports on more than 1,200 diseases.

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• Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

• Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office
Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

Genzyme Runners
Raise Funds for NORD Again

Employees from the Allston, Framingham, and Waltham facilities of the Genzyme Corporation selected NORD as the charity they would represent in the Boston Marathon on April 20. Last year the Genzyme team raised $23,000 for NORD.

Eleven runners signed up to represent Genzyme and NORD in the Marathon. They are (asterisk indicates they also ran last year):

Phillip Maderia*
Gary Dodakian*
Matthew Barrows*
Caitlin Munkley
Joseph Antonetti
Kathryn Landes
Max Knipper
Rod Azadan
Kristen Atchue
Andrew Scholte
Cynthia Laird

All donations made on this page in support of the 2009 Genzyme Boston Marathon team will go directly to NORD programs and services for all individuals and families affected by rare diseases.

Donation

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The Genzyme Boston Marathon Team would like to thank donors for their support. Please indicate below whether NORD may forward your name and email address to the team for that purpose. The amount of your gift will not be disclosed unless you have also give permission for that information to be shared.

	Yes, you can release my name, email address, and gift amount to the Boston Marathon team
	You can release my name and email address to the Boston Marathon team, but please do not disclose my gift amount
	No, I prefer my gift to remain anonymous.

No disease is rare when it affects someone you love. Your donation helps NORD provide information, referrals, advocacy, and other assistance to people affected by rare diseases. Your donation is tax-deductible to the extent permitted by law. Also, please be assured that NORD does not sell, rent, or exchange its donor lists with any individuals, organizations, or companies.

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ABOUT | CONTACT NORD

Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

Become a NORD Member

As a member of NORD, you’ll receive benefits in addition to the satisfaction of knowing you’re helping people with rare diseases. Read about our levels of Membership and the benefits of each.

One of 100 Best Charities

Worth Magazine has chosen NORD as one of the 100 best charities in America.

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NORD Tribute Banquet
Twice a year, NORD hosts events that draw together the rare-disease community. At the Tribute Banquet, held in the spring, individuals, legislators, and corporations are honored for specific achievements.

Last modified Friday, February 12, 2010