Disease Information from NORD, National Organization for Rare Disorders, Inc.

Over 1200 Disease Reports
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• Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,200 diseases.

• Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

• Rare Disease Database

Search this database for reports on more than 1,200 diseases.

View sample report

• Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

• Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office
Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

Contact NORD

Mailing Address:
National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968

Phone Number:
(203) 744-0100
Tollfree: (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590

Fax Number:
(203)798-2291

Medication Assistance Programs
Please go here.

E-mail Contact:
Please note that we are unable to open unexpected e-mail attachments. If you must send us an attachment, please notify us first.

If you have questions related to providing care or accessing services for someone with a rare disease, write to: RN@rarediseases.org.

If you have a question related to genetic testing or the inheritance patterns of diseases, write to: genetic_counselor@rarediseases.org.

For general questions about NORD and our services, please contact:orphan@rarediseases.org

It will help us provide a faster response if you send your question to just one of the three e-mail addresses listed above.

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National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968

ABOUT | CONTACT NORD

Help NORD improve the lives of people with rare diseases.

Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

Last modified Wednesday, January 20, 2010