The National Organization for Rare Disorders (NORD)


Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,150 diseases.

Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

Rare Disease Database

Search this database for reports on more than 1,150 diseases.

View sample report

Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office

NORD's Washington OfficeRead about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

 

NORD Corporate Council Meeting Presentations
May 21, 2007
Capital Hilton Hotel, Washington DC

“Discussion: Follow-on Biologics” and “A Washington DC Update”

“Follow-on Biologics: A Patient Advocate’s View”
Shawn O’Neail, Associate Vice President, Federal Government Relations,
National Multiple Sclerosis Society

“Follow-on Biologics: Coalition View”
(no presentation available)
William B. Schultz
Zuckerman Spaeder LLP

"Follow-on Biologics: An Industry View”
Audrey Phillips, PhD.
Executive Director,
BioPharmaceutical Public Policy Planning, Johnson & Johnson

“Bio-Similars: A European Approach to Follow-on Biologics and Recent Drug Regulatory Development in EU”
Yann Le Cam
Chief Executive Officer
European Organisation for Rare Diseases (EURORDIS)

“To Be or Not to Be…Follow-on Biologics”
Diane Dorman
Vice President Public Policy NORD

FDA Office of Orphan Product Development: An Update
Debra Y. Lewis OD
Acting Director
Office of Orphan Product Development, FDA

NIH Office of Rare Diseases: An Update
Stephen Groft, PharmD. Director,
Office of Rare Diseases, NIH

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Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

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Last modified Tuesday, August 28, 2007