NORD - National Organization for Rare Disorders, Inc.

• Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,150 diseases.

• Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

• Rare Disease Database

Search this database for reports on more than 1,150 diseases.

View sample report

• Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

• Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office
Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

NORD Corporate Council Meeting Presentations
May 21, 2007
Capital Hilton Hotel, Washington DC

“Discussion: Follow-on Biologics” and “A Washington DC Update”

“Follow-on Biologics: A Patient Advocate’s View”
Shawn O’Neail, Associate Vice President, Federal Government Relations,
National Multiple Sclerosis Society

“Follow-on Biologics: Coalition View”
(no presentation available)
William B. Schultz
Zuckerman Spaeder LLP

"Follow-on Biologics: An Industry View”
Audrey Phillips, PhD.
Executive Director,
BioPharmaceutical Public Policy Planning, Johnson & Johnson

“Bio-Similars: A European Approach to Follow-on Biologics and Recent Drug Regulatory Development in EU”
Yann Le Cam
Chief Executive Officer
European Organisation for Rare Diseases (EURORDIS)

“To Be or Not to Be…Follow-on Biologics”
Diane Dorman
Vice President Public Policy NORD

FDA Office of Orphan Product Development: An Update
Debra Y. Lewis OD
Acting Director
Office of Orphan Product Development, FDA

NIH Office of Rare Diseases: An Update
Stephen Groft, PharmD. Director,
Office of Rare Diseases, NIH

ABOUT | CONTACT NORD

Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

Last modified Tuesday, August 28, 2007