Requests for Proposals
The NORD Research Grant Program provides seed-money grants to academic scientists for scientific and/or clinical research. The hope is that these studies will ultimately lead to new diagnostics, treatments, and/or cures for rare diseases. NORD’s program provides grants for the study of diseases for which there are few other sources of funding.
Grants provided through the NORD program are made possible by donations from individuals and organizations to restricted research funds at NORD.
All medical decisions guiding the NORD Research Grant Program are made by NORD’s Medical Advisory Committee.
NORD Funding Opportunities for 2014
NORD is happy to announce six available grants in four diseases.
- Two 2-year grants of up to $50,000 per grant, for scientific research studies and/or clinical research studies related to pseudomyxoma peritonei (PMP). See full RFP and abstract proposal template here.
- One 2-year grant of up to $100,000 for scientific research studies and/or clinical research studies related to Autoimmune Polyglandular Syndrome Type 1 (APS Type 1). See full RFP and abstract proposal template here.
- One 1-year grant of up to $30,000 for a clinical research study related to the diagnosis and/or treatment of Primary Orthostatic Tremor (POT). See full RFP and abstract proposal template here.
- Two 2-year-grants of up to $93,500 per grant, for a scientific and/or clinical research study related to Alveolar Capillary Dysplasia with Misalignment of Pulmonary Veins (ACDMPV). See full RFP and abstract proposal template here.
Schedule for 2014 Grant Cycle:
July 10th, 2014
Deadline for preliminary abstract proposal submission.
NORD Medical Advisory Committee invites finalists to submit detailed proposals.
October 5th, 2014
Deadline for full proposals from finalists.
Winners selected and awards announced.
Funding Opportunities from NORD’s Member Organizations
NORD's member organizations are invited to post information on this page about their research funding opportunities. Researchers who have questions about programs listed below should contact the organization sponsoring the RFP.
NORD member organizations may submit funding opportunities for this page here.
National PKU Alliance (NPKUA)
Contact Name: Christine Brown, firstname.lastname@example.org
Disease Name: Phenylketonuria
Lowe Syndrome Association, Inc.
Contact Name: Christine Knight, Christineknight22@yahoo.com
Batten Disease Support and Research Association
Contact Name: Margie Frazier, email@example.com
BDSRA seeks letters of intent for proposals of innovative research for all or any of the Neuronal Ceroid Lipofuscinoses. After review of the LOI's, full grant submissions will be requested in February, 2015 for peer review.
Contact Name: Jane Castello, firstname.lastname@example.org
Disease Name: Hypophosphatasia
Length of Study: One Year
Application Deadline: December 15, 2014
Lymphangiomatosis & Gorham's Disease Alliance (LGDA)
Contact Name: Jack Kelly-Nupur Garg, PhD- email@example.com
Disease Name: Generalized lymphatic anomaly (lymphangiomatosis) & Gorham-Stout Syndrome
Amount: There are no pre-determined figures governing these parameters.
Length of Study: The period of award and level of funding is unique to each funded project.
Link to Guidelines and Application: http://www.lmiresearch.org/apply-for-funding/ or http://www.lgdalliance.org/research/research-partners-initiatives/