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Events


All NORD and Member Organization Events

Organizational members who would like to post an event on this page may submit it here.

EDNF Learning Conference from Aug 01, 2013 12:00 AM to Aug 03, 2013 12:00 AM
The EDNF will hold its 2013 Learning Conference August 1-3, 2013 in Providence, RI.
TNA 9th National Conference from Oct 04, 2013 12:00 AM to Oct 06, 2013 12:00 AM San Diego,
The TNA will hold its 9th National Conference “Empowering Patients Through Education” on Oct 4-6, 2013 in San Diego, CA
Systemic Sclerosis is a Treatable Multi-System Disease? May 22, 2013 from 10:00 AM to 11:00 AM Webinar,
On May 22, the tenth webinar in a series designed to help patients in the scleroderma community.
Skin Manifestations in Scleroderma Jul 12, 2013 from 10:30 AM to 11:30 AM Webinar,
On July 12, Dr. Lorinda Chung will focus on how scleroderma affects the body, and most specifically, skin manifestations in scleroderma patients.
What's New in the World of Scleroderma Sep 17, 2013 from 10:00 AM to 11:00 AM Webinar,
Sept. 17th will be the next webinar in a series designed to help patients in the scleroderma community.
International Behcet's Awareness Day- May 20, 2013 from May 01, 2013 12:00 AM to Jun 16, 2013 12:00 AM Worldwide,
May is International Behcet's Month and May 20th is International Behcet's Day!
Turner Syndrome Society of the U.S. Annual Conference from Jul 12, 2013 12:00 AM to Jul 14, 2013 12:00 AM Westin Galleria in Dallas, Texas,
The Turner Syndrome Society of the US would like to invite you to the 26th Annual TSSUS Conference on July 12-14, 2013.
35th Annual Association for Glycogen Storage Disease Patient/Family/Professional Conference from Sep 19, 2013 11:00 PM to Sep 20, 2013 11:00 PM Embassy Suites Raleigh-Durham/Research Triangle,
The Annual Association for Glycogen Storage Disease Patient/Family/Professional Conference will be held on September 20-21, 2013
2nd ATP1A3 Symposium in Disease from Sep 23, 2013 10:00 AM to Sep 24, 2013 06:00 PM Catholic University School of Medicine, Rome, Italy,
The aim of the Symposium on Sept. 23-24 is to present the further progress of the research on Alternating Hemiplegia of Childhood.
The Alpha-1 Association’s 22nd annual National Education Conference from Jun 07, 2013 12:00 AM to Jun 09, 2013 12:00 AM Washington, DC,
The Association’s 22nd annual National Education Conference will be held in Washington, DC on June 7-9.
2013 ASF Biennial Conference from Jul 23, 2013 12:00 AM to Jul 26, 2013 12:00 AM Orlando, FL,
The 2013 ASF Biennial Conference will be held July 23-26 in Orlando, FL.
Rare Kidney Stone Patient Meeting & Walk from Jun 07, 2013 12:00 AM to Jun 08, 2013 12:00 AM Rochester, MN,
The OHF in collaboration with the Rare Kidney Stone Consortium & Mayo Clinic Hyperoxaluria Center will present the Rare Kidney Stone Patient Meeting & Walk in Rochester, MN on June 7-8.
Immune Deficiency Foundation (IDF) National Conference from Jun 27, 2013 12:00 AM to Jun 29, 2013 12:00 AM Baltimore, MD,
The IDF will hold its 2013 National Conference June 27-29 in Baltimore, MD.
UMDF Symposium from Jun 12, 2013 08:00 AM to Jun 15, 2013 05:00 PM Newport Beach, CA,
The United Mitochondrial Disease Foundation will host a symposium on June 12-15 in Newport Beach, CA.
The Cardio-Facio-Cutaneous International Family Conference from Jul 31, 2013 12:00 AM to Aug 03, 2013 12:00 AM Orlando, FL,
The Cardio-Facio-Cutaneous International Family Conference will be held July 31-August 3 in Orlando, FL
Hereditary Hemorrhagic Telangiectasia (HHT) Foundation International from Jun 12, 2013 12:00 AM to Jun 15, 2013 12:00 AM Cork, Ireland,
The 10th HHT International Scientific Conference that will be held in Cork, Ireland June 12-15.
Amyloidosis Support Group Meeting- Texas Jun 01, 2013 from 08:00 AM to 02:00 PM Texas,
There will be an Amyloidosis Support Group meeting in Texas on June 1.
Amyloidosis Support Group Meeting- New York Jun 01, 2013 from 08:30 AM to 02:30 PM New York,
There will be an Amyloidosis Support Group meeting in New York on June 1.
Amyloidosis Support Group Meeting- Southern California Jun 22, 2013 from 08:00 AM to 03:00 PM Southern California,
There will be an Amyloidosis Support Group meeting in Southern California on June 22.
Amyloidosis Support Group Meeting- New York Jun 29, 2013 from 09:00 AM to 03:00 PM Memphis, TN,
There will be an Amyloidosis Support Group meeting in Memphis, TN on June 29.

 
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