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Events


All NORD and Member Organization Events

Organizational members who would like to post an event on this page may submit it here.

IDF Walk for Primary Immunodeficiency from Sep 01, 2014 12:00 AM to Dec 31, 2014 12:00 AM Boston, Chicago, Houston, Los Angeles, New York City, and Philadelphia,
IDF will host a Walk for Primary Immunodeficiency in various locations across the country.
Children's Cardiomyopathy Awareness Month from Sep 01, 2014 12:00 AM to Sep 30, 2014 12:00 AM Everywhere,
The Children's Cardiomyopathy Foundation is hosting the first Children's Cardiomyopathy Awareness Month throughout September.
2nd Annual International ECD Medical Symposium from Sep 17, 2014 07:00 PM to Sep 19, 2014 02:00 PM Double Tree Hotel 8120 Wisconsin Avenue Bethesda, MD 20814,
The 2nd Annual International ECD Medical Symposium is scheduled for September 17-19 in Bethesda, Maryland.
NHF 66th Annual Meeting, “Nothing About Us Without Us” from Sep 18, 2014 01:00 AM to Sep 20, 2014 01:00 AM Washington, DC,
The NHF will hold its 66th Annual Meeting, “Nothing About Us Without Us” Sept 18-20 in Washington, DC.
2nd International Erdheim-Chester Disease Medical Symposium from Sep 19, 2014 01:00 AM to Sep 20, 2014 01:00 AM Bethesda, MD,
The 2nd International Erdheim-Chester Disease (ECD) Medical Symposium will be held Sept 18 at the NIH in Bethesda, MD.
36th Annual Association for Glycogen Storage Disease Patient/Family/Professional Conference from Sep 19, 2014 05:00 PM to Sep 20, 2014 06:30 PM DoubleTree by Hilton Detroit-Dearborn,
The 36th Annual AGSD Patient/Family/Professional Conference will be held Sept. 19-20, 2014 at the DoubleTree by Hilton Detroit-Dearborn.
Narcolepsy Network Conference from Oct 17, 2014 03:00 PM to Oct 19, 2014 05:00 AM Hyatt Regency Tech Center, Denver, CO,
Narcolepsy Network will hold its 29th annual conference this year in Denver from October 17-19, 2014.
CurePSP Celebrates 50 Years of Research Oct 17, 2014 from 07:00 PM to 09:00 PM Baltimore, MD,
CurePSP will celebrate 50 years of research at its Milestones and Horizons event Oct 17 in Baltimore, MD.
PNH Regional Meeting: Westchester from Oct 24, 2014 01:00 AM to Oct 25, 2014 01:00 AM TBA,
NORD will host a regional patient meeting for patients and families affected by paroxysmal nocturnal hemoglobinuria (PNH), in Westchester, NY on October 24-25.
Atypical Hemolytic Uremic Syndrome (aHUS) Regional Meeting 2014: San Antonio from Nov 07, 2014 01:00 AM to Nov 08, 2014 01:00 AM San Antonio,
NORD will host a regional patient meeting for patients and families affected by atypical hemolytic uremic syndrome (aHUS)on November 7-8, 2014 in San Antonio, TX.
2nd International Rare Diseases Research Consortium from Nov 07, 2014 09:00 AM to Nov 09, 2014 06:00 PM Sheraton Hotel, Futian, Shenzhen, China,
The 2nd International Rare Diseases Research Consortium will be held in Shenzhen, China from November 7-9.
PNH Regional Meeting 2014: San Diego from Nov 14, 2014 01:00 AM to Nov 15, 2014 01:00 AM TBA,
NORD will host a regional patient meeting for patients and families affected by paroxysmal nocturnal hemoglobinuria (PNH) in San Diego, CA on Nov. 14-15.
Midwest XLH Day from Nov 14, 2014 04:00 PM to Nov 15, 2014 04:30 PM Indianapolis, Indiana,
Join the XLH Network for the first Midwest XLH Day on November 14-15, 2014 in Indianapolis, IN.
Joyce Niblack Memorial Conference on Myeloproliferative Neoplasms from Feb 19, 2015 01:00 AM to Feb 22, 2015 01:00 AM Scottsdale, AZ,
The MPN Education Foundation and the Mayo Clinic are hosting this patient-doctor conference in Scottsdale, AZ Feb 21-22, 2015.
7th International Conference on Children's Bone Health from Jun 27, 2015 01:00 PM to Jun 30, 2015 01:00 PM Salzburg, Austria,
The 7th International Conference on Children's Bone Health will be held in Salzburg, Austria from June 27-30, 2015.

 
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