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NORD and Frontline Medical Communications Publish Neurological Rare Disease Special Report
February 18, 2015 - NORD and FMC publish a special report on neurological diseases.
Sean Hepburn Ferrer Partners with NORD and EURORDIS to Help People Living with Rare Diseases
February 18, 2015 - Son of actress Audrey Hepburn donates proceeds from new book and serves as Rare Disease Day® Ambassador 2015 on February 28.
NORD Announces #1in10 Campaign to Raise Awareness for Rare Disease Day® on February 28
February 13, 2015 - As the official U.S. sponsor of Rare Disease Day®, NORD announces a new social media campaign, #1in10, to raise awareness for the 1 in 10 Americans living with a rare disease. Rare Disease Day will take place on February 28.
NORD Issues Statement on Departure of FDA Commissioner Margaret Hamburg
February 11, 2015 - NORD President and CEO, Peter L. Saltonstall, has issued a statement following the announcement FDA Commissioner Margaret Hamburg, M.D., will leave her job at the end of March.
NORD Issues Statement on 21st Century Cures Discussion Draft
January 28, 2015 - Peter L. Saltonstall, President and CEO of NORD, issued the following statement after the release of a discussion document by the House Energy and Commerce Committee for its 21st Century Cures initiative.
NORD Awards New Grants for Rare Disease Research
January 9, 2015 - Latest grants continue NORD’s 26-year tradition of promoting life sciences research in rare diseases.
Rep. Waxman & FDA Commissioner Hamburg to Speak at NORD Summit
Washington, D.C., Sept. 25, 2014 - Congressman Henry Waxman and FDA Commissioner Margaret Hamburg will speak at NORD Summit in October.
NORD Urges FDA to Consider Rare Disease Treatment Implications When Setting Biologics Naming Policy
June 4, 2014 - NORD urges FDA Commissioner Hamburg to consider concerns of rare disease community when setting policy regarding names for biologics and biosimilars.
National Organization for Rare Disorders to Honor Two Members of Congress, Patient Advocates and Orphan Product Innovators
April 1, 2014 - NORD to Present Awards at “Portraits of Courage” Celebration on May 8th in Washington, DC.
NORD Opposes Congressman Camp’s Proposed Repeal of Orphan Drug Tax Credit, Says It Threatens Health of People with Rare Diseases
February 27, 2014 - A statement issued today by Peter L. Saltonstall, President and CEO of NORD, opposes repeal of Orphan Drug Tax Credit.

 
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