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Neurotrope Joins NORD Corporate Council
April 23, 2015 – Neurotrope, Inc. has joined as a contributing member of the NORD Corporate Council
NORD to Honor Rare Disease Patients, Leaders and Innovators at 2015 Portraits of Courage Gala on May 19
April 10, 2015 - On May 19, NORD will honor the patients, leaders and innovators who are moving the rare disease community forward at its annual Portraits of Courage Gala in Washington, D.C.
Cortendo AB Joins NORD Corporate Council
April 8, 2015 - Leaders in rare disease community unite for National Cushing’s Syndrome Awareness Day on April 8
NORD Supports Patients’ Access to Treatments Act (PATA) to Limit Cost-Sharing and Reduce Excessive Out-of-Pocket Expenses
March 25, 2015 - This important bipartisan legislation was introduced in the House of Representatives this week to limit cost-sharing requirements for medications placed in a specialty tiers
NORD Issues Statement on Harold Varmus’ Departure from NIH’s National Cancer Institute
March 5, 2015 - NORD issued the following statement following the announcement that Harold Varmus, MD, will step down as Director of the National Cancer Institute
NORD and Frontline Medical Communications Publish Neurological Rare Disease Special Report
February 18, 2015 - NORD and FMC publish a special report on neurological diseases.
Sean Hepburn Ferrer Partners with NORD and EURORDIS to Help People Living with Rare Diseases
February 18, 2015 - Son of actress Audrey Hepburn donates proceeds from new book and serves as Rare Disease Day® Ambassador 2015 on February 28.
NORD Announces #1in10 Campaign to Raise Awareness for Rare Disease Day® on February 28
February 13, 2015 - As the official U.S. sponsor of Rare Disease Day®, NORD announces a new social media campaign, #1in10, to raise awareness for the 1 in 10 Americans living with a rare disease. Rare Disease Day will take place on February 28.
NORD Issues Statement on Departure of FDA Commissioner Margaret Hamburg
February 11, 2015 - NORD President and CEO, Peter L. Saltonstall, has issued a statement following the announcement FDA Commissioner Margaret Hamburg, M.D., will leave her job at the end of March.
NORD Issues Statement on 21st Century Cures Discussion Draft
January 28, 2015 - Peter L. Saltonstall, President and CEO of NORD, issued the following statement after the release of a discussion document by the House Energy and Commerce Committee for its 21st Century Cures initiative.

 
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