Events
All NORD and Member Organization Events
Organizational members who would like to post an event on this page may submit it here.
- Alport Syndrome Family Conference - University of Minnesota Jul 21, 2012 12:00 AM
- Planning is currently underway for the Alport Syndrome Family Conference to be held at the University of Minnesota, July 21–22, 2012.
- 2nd Asia Pacific Prader-Willi Syndrome Conference from Mar 10, 2012 12:00 AM to Mar 11, 2012 12:00 AM — Sydney, Australia,
- The Australian and New Zealand PWS Associations are proud to host the 2nd Asia Pacific Prader-Willi Syndrome Conference, to be held in Sydney on March 10 and 11, 2012.
- Understanding Scleroderma Research: A Look Inside the Toolbox Feb 10, 2012 from 11:00 AM to 12:00 PM — Live Free Webinar,
- Join the Scleroderma Research Foundation February 10 for a webinar designed to help patients and others understand what’s being done to find a cure and more updates.
- 5th Annual Fibromuscular Dysplasia Society of America Conference May 18, 2012 from 05:30 PM to 05:00 PM — Cleveland, OH USA,
- The conference will be held May 18-19 in OH and is focused on the rare disease, Fibromuscular Dysplasia.
- THE 8TH BIENNIAL INTERNATIONAL 22Q11.2 DELETION SYNDROME MEETING from Jul 06, 2012 12:00 AM to Jul 10, 2012 12:00 AM — Disney’s Yacht and Beach Club Resorts in Lake Buena Vista, Florida, USA,
- The International 22q Foundation, Inc. would like to invite families, clinicians, scientists, and educators to attend the Biennial 22q11.2 Deletion Syndrome Meeting on July 6, 2012.
- Aplastic Anemia & MDS International Foundation (AA&MDSIF) from Jan 15, 2012 12:00 AM to Oct 27, 2012 12:00 AM
- The AA&MDSIF has announced its Living with Aplastic Anemia, MDS or PNH Regional Patient and Family Conference Series for 2012 for seven metropolitan areas.
- Neuroendocrine Cancer Patient Education Event Mar 17, 2012 from 12:30 PM to 05:00 PM — Cedars-Sinai Medical Center,
- CFCF is pleased to host the 4th annual Neuroendocrine Tumor Patient Education Seminar at Cedars-Sinai Medical Center on Saturday, March 17, 2012.
- NFXF Advocacy Day from Mar 06, 2012 01:00 PM to Mar 07, 2012 05:00 PM
- Advocacy Day is an annual event sponsored and organized by the National Fragile X Foundation. This year it will take place March 6-7.
- Help revisit the 2000 PKU Consensus Statement! from Feb 22, 2012 12:00 AM to Feb 23, 2012 12:00 AM — Natcher Auditorium, NIH Campus, Bethesda, MD,
- NIH is sponsoring a PKU Scientific Review Conference February 22-23, 2012.
- 10th International Pulmonary Hypertension Conference and Scientific Sessions from Jun 22, 2012 01:00 PM to Jun 24, 2012 11:30 AM — Orlando, FL,
- The 10th International Pulmonary Hypertension Conference and Scientific Sessions will take place June 22-24, 2012 in Orlando, Fla.
- The LAM Foundation’s International Research Conference and Patient & Family Educational LAMposium from Apr 20, 2012 12:00 AM to Apr 22, 2012 12:00 AM — The Westin Hotel in downtown Cincinnati, Ohio,
- The conference begins April 20 in Ohio, and provides an opportunity for LAM patients, their families and friends, physicians, and scientists to unite the LAM and scientific communities.
- Fourth Congenital Hyperinsulinism Family Conference from May 17, 2012 08:30 AM to May 18, 2012 04:30 PM — The Colket Translational Research Building at the Children's Hospital of Philadelphia,
- A two-day conference in PA on May 17-18 where congenital hyperinsulinism families and individuals can learn from world-renowned physicians and researchers.
- AFTD’s Education Conference and Annual Meeting Apr 27, 2012 from 11:30 AM to 06:00 PM — Atlanta, GA ,
- AFTD will hold an education conference and annual meeting on April 27, 2012 in Atlanta, GA.
