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NORD URGES FDA TO CONSIDER RARE DISEASE TREATMENT IMPLICATIONS WHEN SETTING BIOLOGICS NAMING POLICY
In a letter submitted today to FDA, NORD urged Commissioner Hamburg to give serious consideration to the concerns of the rare disease community when setting policy regarding official names for biologics, including biosimilars.
National Organization for Rare Disorders to Honor Two Members of Congress, Patient Advocates and Orphan Product Innovators
NORD to Present Awards at “Portraits of Courage” Celebration on May 8th in Washington DC
NORD Opposes Congressman Camp’s Proposed Repeal of Orphan Drug Tax Credit, Says It Threatens Health of People with Rare Diseases
The following statement was issued today by Peter L. Saltonstall, President and CEO, National Organization for Rare Disorders (NORD):
Join NORD and ABC News for a Rare Disease Day Tweetchat
NORD will be co-sponsoring a tweetchat on the topic of "Conquering Rare Diseases" with ABC News' Dr. Richard Besser, Feb. 25, at 1:00 p.m. ET.
NORD Commends Expansion of SSA’s “Compassionate Allowances” List
People with Rare Diseases Often Experience Devastating Financial Challenges, NORD President Says
NORD Senior VP to Speak at Faster Cures Conference
J. Russell Teagarden, NORD Senior Vice President for Medical & Scientific Affairs, will speak on Nov. 5, 2013 at the Partnering For Cures conference in New York City.
More Than 100 Rare Disease Patient Organizations and Medical Experts Join NORD in Urging Congress to End the Shutdown
Delays in Vital Medical Research and Development of Therapies Harm Children and Adults with Rare Diseases
SSA Compassionate Allowances Webinar Available for Replay
Study Finds That Bill to Protect Patient Access to Medically Necessary Treatments Would Have Negligible Impact on Insurance Premiums
Press release from Coalition for Accessible Treatments regarding study of H.R. 460, the Patients' Access to Treatments Act of 2013.
NORD Publishes New Online Physician’s Guide to Gaucher Disease
Guides are produced by NORD to promote earlier diagnosis and treatment for patients

 
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