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Rep. Waxman & FDA Commissioner Hamburg to Speak at NORD Summit
Washington, D.C., Sept. 25, 2014 - Congressman Henry Waxman and FDA Commissioner Margaret Hamburg will speak at NORD Summit in October.
Celebrating the 30th Anniversary of NORD and the Orphan Drug Act!
May 14, 2013 - Images from NORD's 30th Anniversary Celebration
FDA Commissioner to Patient Advocates: Your Input Matters
January 21, 2011 - FDA Commissioner Dr. Margaret Hamburg conducted a one-on-one dialogue with leaders of approximately 60 patient organizations at forum hosted by NORD.
NORD And Advocacy Partners Ask FDA To Let Them Help Define Risk
October 5, 2011 - NORD and about 30 of its advocacy partners have sent letters to key officials at the FDA.
Landmark NORD Study Concludes FDA is Flexible in Reviewing Therapies for Rare Diseases
October 11, 2011 - NORD today released a landmark report documenting flexibility in the FDA review of potential treatments for patients with rare diseases.
NORD Honors Rare Disease Advocates and Innovators
May 15, 2012 - NORD honored members of Congress, patient advocates, medical researchers, and companies that have brought new therapies to market.
Images from the NORD 2012 Partners in Progress Celebration
May 15, 2012 - View images from the NORD 2012 Partners in Progress Celebration which took place on May 15th at Union Station in Washington, DC.
NORD Calls Bill Passed By Senate Today Most Important Since Orphan Drug Act
May 24, 2012 - NORD applauds legislation passed by the Senate and says it contains the most comprehensive improvements to public policy for rare disease therapies since 1983.
NORD Applauds Congress for Bipartisan Action on New Law
May 2012 - Many Members of Congress played key roles in shaping the FDA Safety and Innovation Act.
Struggling With Undiagnosed Condition, Woman Turns Her Thoughts to Others
August 27, 2012 - Delayed diagnosis remains a serious issue. This young woman channeled her frustration into helping others.

 
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