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Wanted: Reviewers for PCORI
Help assess proposals for PCORI's National Patient-Centered Clinical Research Network Initiative by reviewing proposals for CDRNs and PPRNs.
Connecticut Boy Helps Alert Physicians to Rare Seizure Disorder
Seeking to Protect Infants and Children from Lifelong Neurological Impairment
60+ Patient Organizations Join NORD in Letter to Congress Today
U.S. Conference on Rare Diseases and Orphan Products to Focus on “The New Era in Health Care”
Experts from government, industry, patient advocacy groups and investment community to speak about current trends and future directions
NORD Senior VP Elected to USP Expert Committee
J. Russell Teagarden of NORD has been elected to the Therapeutic Information and Formulary Support Expert Committee of the U.S. Pharmacopeial Convention.
1st Annual Rare Diseases/Orphan Products Summit
Read about the highlights from the 1st Annual Rare Diseases and Orphan Products Summit hosted in Washington, DC in 2011.
Medical Foods Meeting
View the presentations from the February, 2011 meeting.
Sami Said, MD, Distinguished Professor at SUNY and NORD Medical Advisor
NORD is deeply saddened to learn of the death of Sami Said, MD, who served for many years as the chairman of NORD’s Medical Advisory Committee and was a tireless and dedicated friend to the rare disease patient community.
View "An Overview of the Social Security Disability Programs" webinar
On April 17, Peter Smith, a Policy Analyst with the Social Security Administration conducted an SSA overview webinar.
oin us as Siobhan Magnus, American Idol finalist, headlines the evening’s entertainment.

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