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NORD Awards New Grants for Rare Disease Research
January 9, 2015 - Latest grants continue NORD’s 26-year tradition of promoting life sciences research in rare diseases.
Rep. Waxman & FDA Commissioner Hamburg to Speak at NORD Summit
Washington, D.C., Sept. 25, 2014 - Congressman Henry Waxman and FDA Commissioner Margaret Hamburg will speak at NORD Summit in October.
NORD Urges FDA to Consider Rare Disease Treatment Implications When Setting Biologics Naming Policy
June 4, 2014 - NORD urges FDA Commissioner Hamburg to consider concerns of rare disease community when setting policy regarding names for biologics and biosimilars.
National Organization for Rare Disorders to Honor Two Members of Congress, Patient Advocates and Orphan Product Innovators
April 1, 2014 - NORD to Present Awards at “Portraits of Courage” Celebration on May 8th in Washington, DC.
NORD Opposes Congressman Camp’s Proposed Repeal of Orphan Drug Tax Credit, Says It Threatens Health of People with Rare Diseases
February 27, 2014 - A statement issued today by Peter L. Saltonstall, President and CEO of NORD, opposes repeal of Orphan Drug Tax Credit.
NORD Commends Expansion of SSA’s “Compassionate Allowances” List
January 15, 2014 - People with rare diseases often experience devastating financial challenges, NORD president says.
Genzyme and NORD Establish Program to Help Undiagnosed Patients with Rare Diseases
December 16, 2013 - New fund will help patients with mysterious, undiagnosed medical conditions who have applied to the NIH Undiagnosed Diseases Program, but who cannot afford the basic medical tests needed to make them eligible to participate
More Than 100 Rare Disease Patient Organizations and Medical Experts Join NORD in Urging Congress to End the Shutdown
October 11, 2013 - Delays in vital medical research and development of therapies harm children and adults with rare diseases.
NORD Publishes New Online Physician’s Guide to Gaucher Disease
September 4, 2013 - Guides are produced by NORD to promote earlier diagnosis and treatment for patients.
Connecticut Boy Helps Alert Physicians to Rare Seizure Disorder
August 27, 2013 - 14-year old boy is seeking to protect infants and children from lifelong neurological impairment.

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