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Can Our Society Afford to Provide Treatments for People with Rare Diseases?
October 3, 2012 - A medical adviser to NORD responds to this question.
NORD, EURORDIS and CORD Release a Joint Declaration of 10 Key Principles for Rare Disease Patient Registries
November 14, 2012 - NORD, CORD, and EURORDIS have released a joint declaration on common principles regarding Rare Disease Patient Registries.
FDA, Medical Device Industry and NORD Announce New Public-Private Partnership
December 12, 2012 - First-ever PPP created to focus exclusively on advancing medical device regulatory science.
NORD Praises SSA for Expanding Program to Help People with Devastating Diseases
December 6, 2012 - Compassionate Allowances Program provides expedited disability review for patients with severely disabling diseases.
NORD Issues Statement on Death of Actor Jack Klugman
December 2012 - Jack Klugman touched the lives of millions of Americans through his support for what ultimately became the Orphan Drug Act of 1983.
FOR Orphan Drug Act and NORD: A Day to Remember and Celebrate
January 4, 2013 - Rare disease patient advocates celebrate 30th anniversary today.
Leading Patient Organizations Establish Partnership to Improve the Lives of Tens of Millions of Rare Disease Patients in Japan and the U.S.
January 29, 2013 - JPA and NORD to collaborate toward new treatments and improved policies.
Medical Foods Meeting
View the presentations from the February, 2011 meeting.
NORD Senior VP Elected to USP Expert Committee
July 10, 2013 - J. Russell Teagarden of NORD has been elected to the Therapeutic Information and Formulary Support Expert Committee of the U.S. Pharmacopeial Convention.
60+ Patient Organizations Join NORD in Letter to Congress Today
July 25, 2013 - More than 60 rare disease patient organizations signed letter to key members of Congress by NORD in support of maintaining the Orphan Drug Tax Credit.

 
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