You are here: Home / News & Events / News

News

Leading Patient Organizations Establish Partnership to Improve the Lives of Tens of Millions of Rare Disease Patients in Japan and the U.S.
January 29, 2013 - JPA and NORD to collaborate toward new treatments and improved policies.
FOR Orphan Drug Act and NORD: A Day to Remember and Celebrate
January 4, 2013 - Rare disease patient advocates celebrate 30th anniversary today.
NORD Issues Statement on Death of Actor Jack Klugman
December 2012 - Jack Klugman touched the lives of millions of Americans through his support for what ultimately became the Orphan Drug Act of 1983.
NORD Praises SSA for Expanding Program to Help People with Devastating Diseases
December 6, 2012 - Compassionate Allowances Program provides expedited disability review for patients with severely disabling diseases.
FDA, Medical Device Industry and NORD Announce New Public-Private Partnership
December 12, 2012 - First-ever PPP created to focus exclusively on advancing medical device regulatory science.
NORD, EURORDIS and CORD Release a Joint Declaration of 10 Key Principles for Rare Disease Patient Registries
November 14, 2012 - NORD, CORD, and EURORDIS have released a joint declaration on common principles regarding Rare Disease Patient Registries.
Can Our Society Afford to Provide Treatments for People with Rare Diseases?
October 3, 2012 - A medical adviser to NORD responds to this question.
Struggling With Undiagnosed Condition, Woman Turns Her Thoughts to Others
August 27, 2012 - Delayed diagnosis remains a serious issue. This young woman channeled her frustration into helping others.
NORD Applauds Congress for Bipartisan Action on New Law
May 2012 - Many Members of Congress played key roles in shaping the FDA Safety and Innovation Act.
NORD Calls Bill Passed By Senate Today Most Important Since Orphan Drug Act
May 24, 2012 - NORD applauds legislation passed by the Senate and says it contains the most comprehensive improvements to public policy for rare disease therapies since 1983.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .