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FOR Orphan Drug Act and NORD: A Day to Remember and Celebrate
January 4, 2013 - Rare disease patient advocates celebrate 30th anniversary today.
Leading Patient Organizations Establish Partnership to Improve the Lives of Tens of Millions of Rare Disease Patients in Japan and the U.S.
January 29, 2013 - JPA and NORD to collaborate toward new treatments and improved policies.
Medical Foods Meeting
View the presentations from the February, 2011 meeting.
NORD Senior VP Elected to USP Expert Committee
July 10, 2013 - J. Russell Teagarden of NORD has been elected to the Therapeutic Information and Formulary Support Expert Committee of the U.S. Pharmacopeial Convention.
60+ Patient Organizations Join NORD in Letter to Congress Today
July 25, 2013 - More than 60 rare disease patient organizations signed letter to key members of Congress by NORD in support of maintaining the Orphan Drug Tax Credit.
Connecticut Boy Helps Alert Physicians to Rare Seizure Disorder
August 27, 2013 - 14-year old boy is seeking to protect infants and children from lifelong neurological impairment.
NORD Publishes New Online Physician’s Guide to Gaucher Disease
September 4, 2013 - Guides are produced by NORD to promote earlier diagnosis and treatment for patients.
More Than 100 Rare Disease Patient Organizations and Medical Experts Join NORD in Urging Congress to End the Shutdown
October 11, 2013 - Delays in vital medical research and development of therapies harm children and adults with rare diseases.
NORD Commends Expansion of SSA’s “Compassionate Allowances” List
January 15, 2014 - People with rare diseases often experience devastating financial challenges, NORD president says.
NORD Opposes Congressman Camp’s Proposed Repeal of Orphan Drug Tax Credit, Says It Threatens Health of People with Rare Diseases
February 27, 2014 - A statement issued today by Peter L. Saltonstall, President and CEO of NORD, opposes repeal of Orphan Drug Tax Credit.

 
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