You are here: Home / News & Events / News

News

NORD, EURORDIS and CORD Release a Joint Declaration of 10 Key Principles for Rare Disease Patient Registries
November 14, 2012 - NORD, CORD, and EURORDIS have released a joint declaration on common principles regarding Rare Disease Patient Registries.
Can Our Society Afford to Provide Treatments for People with Rare Diseases?
October 3, 2012 - A medical adviser to NORD responds to this question.
Struggling With Undiagnosed Condition, Woman Turns Her Thoughts to Others
August 27, 2012 - Delayed diagnosis remains a serious issue. This young woman channeled her frustration into helping others.
NORD Applauds Congress for Bipartisan Action on New Law
May 2012 - Many Members of Congress played key roles in shaping the FDA Safety and Innovation Act.
NORD Calls Bill Passed By Senate Today Most Important Since Orphan Drug Act
May 24, 2012 - NORD applauds legislation passed by the Senate and says it contains the most comprehensive improvements to public policy for rare disease therapies since 1983.
Images from the NORD 2012 Partners in Progress Celebration
May 15, 2012 - View images from the NORD 2012 Partners in Progress Celebration which took place on May 15th at Union Station in Washington, DC.
NORD Honors Rare Disease Advocates and Innovators
May 15, 2012 - NORD honored members of Congress, patient advocates, medical researchers, and companies that have brought new therapies to market.
Landmark NORD Study Concludes FDA is Flexible in Reviewing Therapies for Rare Diseases
October 11, 2011 - NORD today released a landmark report documenting flexibility in the FDA review of potential treatments for patients with rare diseases.
NORD And Advocacy Partners Ask FDA To Let Them Help Define Risk
October 5, 2011 - NORD and about 30 of its advocacy partners have sent letters to key officials at the FDA.
FDA Commissioner to Patient Advocates: Your Input Matters
January 21, 2011 - FDA Commissioner Dr. Margaret Hamburg conducted a one-on-one dialogue with leaders of approximately 60 patient organizations at forum hosted by NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .