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NORD TO HONOR RARE DISEASE HEROES AT 30TH ANNIVERSARY CELEBRATION
Momentous Event to Highlight Historic Past, Promising Future
A Well-Traveled Banner
Cindy Abbott climbed Mt. Everest for Rare Disease Day 2010 and in 2013 she competed in the 1,000-mile Iditarod, carrying the same banner.
Read Why One Individual Completed a “Walk for NORD”
Friends of Newborn Screening Coalition Sign-On Letter
NORD has added its name to the following letter, which is being circulated by the March of Dimes, and we encourage our members to do the same.
Individual Creates a Charity Art Book to Support NORD
Over 70 artists contributed to COLORS, a charity art book created and sold specifically to raise money for NORD’s mission.
Leading Patient Organizations Establish Partnership to Improve the Lives of Tens of Millions of Rare Disease Patients in Japan and the U.S.
First Prize awarded at Major International Conference For Poster on Rare Cancer
The poster is based on the NORD research grant awarded to Dr. Renehan in 2009.
FOR Orphan Drug Act and NORD: A Day to Remember and Celebrate
Rare Disease Patient Advocates Celebrate 30th Anniversary Today
FDA Recently Approved Two Orphan Drugs
FDA approved two new Orphan Drugs.
NORD Issues Statement on Death of Actor Jack Klugman
Jack Klugman touched the lives of millions of Americans through his support for what ultimately became the Orphan Drug Act of 1983.

 
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