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Connecticut Boy Helps Alert Physicians to Rare Seizure Disorder
August 27, 2013 - 14-year old boy is seeking to protect infants and children from lifelong neurological impairment.
60+ Patient Organizations Join NORD in Letter to Congress Today
July 25, 2013 - More than 60 rare disease patient organizations signed letter to key members of Congress by NORD in support of maintaining the Orphan Drug Tax Credit.
NORD Senior VP Elected to USP Expert Committee
July 10, 2013 - J. Russell Teagarden of NORD has been elected to the Therapeutic Information and Formulary Support Expert Committee of the U.S. Pharmacopeial Convention.
Celebrating the 30th Anniversary of NORD and the Orphan Drug Act!
May 14, 2013 - Images from NORD's 30th Anniversary Celebration
Leading Patient Organizations Establish Partnership to Improve the Lives of Tens of Millions of Rare Disease Patients in Japan and the U.S.
January 29, 2013 - JPA and NORD to collaborate toward new treatments and improved policies.
FOR Orphan Drug Act and NORD: A Day to Remember and Celebrate
January 4, 2013 - Rare disease patient advocates celebrate 30th anniversary today.
NORD Issues Statement on Death of Actor Jack Klugman
December 2012 - Jack Klugman touched the lives of millions of Americans through his support for what ultimately became the Orphan Drug Act of 1983.
NORD Praises SSA for Expanding Program to Help People with Devastating Diseases
December 6, 2012 - Compassionate Allowances Program provides expedited disability review for patients with severely disabling diseases.
FDA, Medical Device Industry and NORD Announce New Public-Private Partnership
December 12, 2012 - First-ever PPP created to focus exclusively on advancing medical device regulatory science.
NORD, EURORDIS and CORD Release a Joint Declaration of 10 Key Principles for Rare Disease Patient Registries
November 14, 2012 - NORD, CORD, and EURORDIS have released a joint declaration on common principles regarding Rare Disease Patient Registries.

 
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