NORD's
Washington Office
 Check here to read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
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Please share the following with your
members:
As you read this, key Congressional
leaders are behind closed doors determining what YOUR healthcare options will
look like next year.
The time to act is now, by joining NORD
and its Member Organizations in the following:
- Call the switchboard of the U.S.
Congress at (202) 224-3121 and ask for your Representative's office.
- Ask your Member of Congress to call
Rep. Patrick Kennedy's (D-RI) office to sign on to his letter to abolish
lifetime caps.
- If you live in North Dakota and have
been affected by lifetime insurance caps, please share your story with Senator
Byron Dorgan (D-ND). Sen. Dorgan may also ask the Senate to abolish lifetime
caps and will need these stories to explain the issue to his colleagues.
You can use the following phone script
in your call to your legislator.
And, remember, the ultimate authority of the U.S. Congress to act resides in YOU!
Together, we can make a difference!
PHONE SCRIPT:
Good morning/afternoon. My name is
_____________________ and I am a constituent living in (city, state). I have a
rare disease.
I am calling to bring to your attention
a letter that Rep. Patrick Kennedy is circulating in Congress. This letter calls
for the immediate abolition of lifetime insurance caps in the House health care
reform bill, HR 3200.
As this bill is currently written,
patients may have to wait up to nine years after reform is enacted to see those
lifetime caps eliminated. People like me who have rare diseases face possible
financial ruin if lifetime insurance caps are not immediately abolished. This
issue is very important to me.
Will Representative (insert name of
your Representative) sign on to Patrick Kennedy's letter?
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