2007

Representative Judy Biggert (R-IL)

Representative Louise Slaughter (D-NY)

William Gahl, MD, PhD

EURORDIS

Alexion Pharmaceuticals, Inc.

Genzyme Corporation

Karl Storz Endoscopy-America

Shire Human Genetics

2006

John J. McCormick, MD

Biotechnology Industry Organization

Pharmaceutical Research and Manufacturers of America

Generic Pharmaceutical Association

BioMarin Pharmaceutical Inc.

Celgene Corporation

Insmed, Inc.

Novartis Pharmaceuticals

The Food and Drug Administration

2005

Senator Jeff Bingaman (New Mexico)

Elizabeth Dickinson

Bausch & Lomb

Pharmion Corporation

Synthes Corporation

Dr. Robert Campbell, Jr.

Dr. Josep Torrent-Farnell

2004

Stephen S. Arnon, M.D.

California Department of Health

Senator Mike DeWin

Senator Christopher J. Dodd

Janet Woodcock, M.D.

BioMarin Pharmaceuticals

Genzyme Corporation

2003

The United States House of Representatives

The United States Senate

The U.S. Department of Health and Human Services

The Food and Drug Administration

The National Institutes of Health

Amgen

Allergan, Inc.

Bayer

Bristol Meyers

Genentech

Genzyme

Glaxo

Hoechst Marion Roussel (Aventis Pharmaceutical)

Hoffman-LaRoche

Imunex

MedImmune

Medtronic, Inc.

Mylan

Novartis

Orphan Medical

Pharmacia

Serono

Sigma-Tau Pharmaceuticals

Swedish Orphan International AB

Teva

2002

U.S. Representative Mark Foley

U.S. Representative John M. Shimkus

U.S. Representative Henry Waxman

Linda Suydam, FDA Senior Associate Commissioner

Actelion Pharmaceuticals US, Inc.

AstraZeneca

The Medtronic Foundation

ILEX Oncology, Inc.

Millennium Pharmaceuticals, Inc.

Novartis Pharmaceuticals

2001

U.S.Congressman Senator David R. Obey

Dr. Robert J. Temple, FDA Director Office of Medical Policy

Dr. Roscoe O. Brady, NIH Chief of Developmental and Metabolic Neurology

Kay Holcombe, Executive Vice President of Policy Directions

Cell Therapeutics, Inc.

InterMune

Orphan Medical, Inc.

General Cologne Re Corporation

Transkaryotic Therapies, Inc.

2000

U.S. Representative John D. Dingell

U.S. Representative Charles Norwood

Christopher C. Jennings, Assistant to the President for Health Policy Development

Frank Sasinowski, Hyman, Phelps & McNamara P.C.

Nancy Harris, Chairperson NORD Board of Directors

Elan Pharmaceuticals

INO Therapeutics, Inc.

Orphan Pharmaceuticals U.S.A., Inc.

1999

U.S. Senator Dianne Feinstein

Jane E. Henney, M.D., Commissioner, Food and Drug Administration

Agnes Varis, President, Agvar Chemicals, Inc.

Curt Engelhorn, President, European Foundation for the Advancement of Medicine and the Engelhorn Foundation for Rare Diseases

Celgene Corporation

Centocor, Inc

Cephalon, Inc.

1998

Larry King, CNN

U.S. Congresswoman Senator Louise M. Slaughter

U.S. Congressman Robert Matsui

Stephen C. Groft, Pharm.D, Director, NIH Office of Rare Diseases

Lars-Uno Larsson, President and CEO, Swedish Orphan, AB

Genetics Institute, Inc.

PathoGenesis Corporation

1997

U.S. Senator Richard L. Durbin

U.S. Congressman Christopher Shays

William V. Corr, Chief of Staff, U.S. Department of Health and Human Services

MedImmune

Rhone-Poulenc Rorer

Ucyclyd Pharma

1996

U.S. Senator James M. Jeffords

W. French Anderson, M.D., Gene Therapy Pioneer

Marlene Haffner, M.D., M.P.H., Director, FDA Office of Orphan Products Development

Glaxo Wellcome, Inc.

Orphan Medical, Inc.

1995

Harold Varmus, M.D., Director, National Institutes of Health

Carol Hampton Rasco, Domestic Policy Advisor to the President

Jess G. Thoene, M.D., Professor of Pediatrics, University of Michigan

Past Chairman of the Board of NORD

Ken Larsen, President, Copley Pharmaceutical, Inc.

Mylan Pharmaceuticals, Inc.

Genetic Therapy, Inc

1994

Philip R. Lee, M.D., Assistant Secretary of Health, Department of Health & Human Services

Francis S. Collins, M.D., Ph.D., Director, National Center for Human Genome Research, National Institutes of Health

Larry Thompson, Author, Correcting the Code: Inventing the Genetic Cure for the Human Body

Miles, Inc.

Roberts Pharmaceutical

1993

U.S. Senator Nancy L. Kassebaum

U.S. Congressman Henry A. Waxman

Jack Klugman, Actor

Bruce Fried, Senior Vice President & Deputy Council, The Wexler Group

Melvin Van Woert, M.D., Neurologist & Pharmacologist, Mt. Sinai School of Medicine

Bristol-Myers Squibb Company

Mission Pharmacal Company

1992

David Kessler, M.D., J.D., Commissioner, Food and Drug Administration

Allergan, Inc.

Teva/Lemmon/Gate Pharmaceuticals

Sigma-Tau Pharmaceuticals, Inc.

1991

U.S. Senator Mark O. Hatfield

Theodore Cooper, M.D., Chairman of the Board and Chief Executive Officer, The Upjohn Company

Marion Finkel, M.D., Vice President, Sandoz Pharmaceuticals

Enzon, Inc.

Schering-Plough Company

1990

U.S. Senator Tom Harkin

U.S. Congressman Silvio Conte

Jacob Schein, Chairman of the Board Schien Laboratories

James B. Wyngaarden, M.D.

Burroughs Wellcome Company

Somerset Pharmaceuticals, Inc.

1989

U.S. Congressman Doug Walgreen

American Airlines

Warner-Lambert Company

Kendall-McGaw Laboratories 

1988

U.S. Senator Lowell P. Weicker, Jr.

Frank Young, M.D., Commissioner, Food and Drug Administration

Alice Fordyce, Executive Vice President, Albert and Mary Lasker Foundation

Merck & Company

Lyphomed, Inc.

Sandoz Pharmaceuticals

1987

U.S. Senator Orrin Hatch

U.S. Congressman Jamie L. Whitten

Bristol-Myers Squibb Company

Hoffman-LaRoche

Revco Drug Stores

1986

U.S. Senator Nancy L. Kassebaum

U.S. Senator Howard Metzenbaum

U.S. Congressman Henry A. Waxman