The National Organization for Rare Disorders (NORD)


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Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

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Organizational Database

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News Briefs

Supreme Court Narrows Disability Law

On January 8, 2002, the U.S. Supreme Court ruled that people who are "disabled" under the Americans With Disabilities Act (ADA) must have substantial limitations of their daily functional abilities, not only limitations that affect their job performance.

The ADA is the 1990 federal law that protects the civil rights of people with disabilities. Employers are required to make "reasonable accommodations" for disabled workers so they will be able to do their job. The law defines disability as "a physical or mental impairment that substantially limits one or more of the major life activities," "a record of such impairment," or "being regarded as having such an impairment". The law was designed to prevent discrimination against people with disabilities, especially in the workplace.

The Supreme Court unanimously ruled that the definition of substantial limitations to major life activities "needs to be interpreted strictly," and therefore people are not disabled if their condition does not prevent them from performing daily tasks such as dressing, walking, toileting, etc.

The case, which is one of three ADA cases on the Supreme Court's 2002 calendar, involved a woman with a repetitive motion injury who asked her employer (Toyota) to assign her to a job involving minimal use of her arms. The decision means that, in the future, courts will have to consider whether a person's disability affects his functioning in daily living activities, along with his ability to do his job. Thus, people who do not have serious impairments that interfere with daily functional activities may not qualify for the protections of the law.


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Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

Previous News Briefs

FDA and European Union Adopt Shared Form

NORD Representatives Address Congress

CETT Increases Access to Genetic Tests

NORD Honors Innovators at 2007 Tribute Banquet

FDA Approves First Product for PNH

NORD Staff and Rare-Disease Researchers Describe Their Work for Wife of President of Germany

A Common Lesson of Rare Diseases

NORD Issues RFPs

Deadline Announced for Grant Applications

Conference in Korea Focuses on Rare Diseases

FDA Approves Revlimid For Multiple Myeloma

Penn Researchers Pinpoint Cause of FOP

FDA Approves HDE for Rare Disorder of Placenta

CFC Genes Identified With Help of Patient Organization

Saving Andy Martin’s Cells

Haffner Honored by Royal College of Physicians

NORD President Honored For Health Advocacy

NIH Opens New Clinical Research Hospital

Gulf War ALS Study Results Reported

Researchers Identify Progeria Gene

Dystonia Patients Gain Access to "Brain Pacemaker"

Scientists Block CJD-Like Illness in Mice

Genetic Signature Linked to Severe Lupus Symptoms

Genes Linked to Methylmalonic Aciduria Identified

French Researchers Claim a Cure for Severe Sickle Cell

NF1 Research: When a Good Gene Goes Bad

Thalidomide Shows Promise

For Smallpox: Vaccine Production on Target

NORD Member Organization Update August 2002

FDA Approves New "Orphan Drug"

Supreme Court Narrows Disability Law

Dramatic Results Reported in Stiff Person Syndrome Study

Gulf War Vets Have Higher Rate of ALS

Diseases of Bioterrorism

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Last modified Friday, March 21, 2008