The National Organization for Rare Disorders (NORD)

Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,200 diseases.

Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

Rare Disease Database

Search this database for reports on more than 1,200 diseases.

View sample report

Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office

Check here to read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

 

News Briefs

Gulf War ALS Study Results Reported

Veterans deployed to the Persian Gulf in the 1991 Gulf War have developed ALS (amyotrophic lateral sclerosis) at a rate that is twice as high as that among veterans not deployed, according to a study published in the September 23 issue of the journal, Neurology. Sometimes called "Lou Gehrig's disease", ALS kills brain and spinal cord cells that control muscle movement, resulting in gradual muscle wasting and loss of movement. It usually strikes those between the ages of 40 and 70, and affects as many as 30,000 Americans at a given time.

The ALS Association served as a consultant to the departments of Defense and Veterans Affairs, which conducted the study. The intent was to identify all occurrences of ALS in the military since the start of the Gulf War. The Sept. 23 issue of the journal includes two articles on the Gulf War ALS study, along with an editorial cautioning that the total number of cases of ALS in the study was small.

A National Registry of Veterans with ALS has been established. For information, go to www.rarediseases.org/research/clinicaltrials.

Over 1200 Disease Reports
Not a Subscriber yet?
                    Details Here

Enter your name and e-mail address if you would like to receive "News Blasts" from NORD






ABOUT | CONTACT NORD

Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

Previous News Briefs

ICORD 2008

FDA and European Union Adopt Shared Form

NORD Representatives Address Congress

CETT Increases Access to Genetic Tests

NORD Honors Innovators at 2007 Tribute Banquet

Stay connected!

If you liked these News Briefs, you’ll love our free e-mail News Blasts. You’ll receive breaking news affecting the rare-disease community directly in your inbox if you enter your e-mail address in the box at the top of this page.

ABOUT NORD .|. CONTACT NORD .|. MEMBERSHIP .|. PRIVACY POLICY .|. DISCLAIMER .|. HOME
©2009 NORD - National Organization for Rare Disorders, Inc. All rights reserved.

Last modified Wednesday, March 03, 2010