Submit Your Rare Disease Hero

NORD invites you to submit a photo and brief (300 words or less) description of the work of a rare disease hero for display on this website so that all can read their stories. Your hero can be someone currently active or someone who helped drive progress in the past.

Contact Information

First Name

Last Name

Organization or Affiliation

Contact Email

Contact Phone Number

Are you submitting this as an individual or someone representing an organization?

Rare Disease Hero

Name of the Rare Disease Hero

Tell Us About Your Rare Disease Hero

characters remaining

Image of the Rare Disease Hero

Image File *Please upload your picture (The file can not be larger then 5MB and must be one of the following file types: jpg, jpeg, gif, or png.)

Link to Image of Hero *Please use the format: http://www.

When you have successfully submitted this form, you will be automatically re-directed to the Heroes in the Rare Disease Community page.