Patient and Family Stories
We invite any member of the rare disease community who would like to share a story about an individual patient or family to do so here. Stories should be no longer than 300 words. Photos may also be submitted.
For 30 years, NORD and our members have dedicated our efforts to empowering the patient community and advancing the goals of the entire rare disease community. The stories on these pages will show why we do that … and therefore will provide the most important message of all for this 30th anniversary year!