The National Organization for Rare Disorders (NORD)


• Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,150 diseases.

• Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

• Rare Disease Database

Search this database for reports on more than 1,150 diseases.

View sample report

• Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

• Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office
NORD's Washington OfficeRead about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

 

NORD Senior Staff

  • Peter L. Saltonstall
    President & CEO

  • Robert Larson
    Vice President of Finance & Operations

  • Jean Campbell
    Vice President of Membership Development

  • Diane Dorman
    Vice President of Public Policy

  • Mary Dunkle
    Vice President of Communications

  • Maria Hardin
    Vice President of Patient Services

  • Michael Langan
    Vice President of Industry Relations

  • Heidi Weber
    Vice President of Development

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Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

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©2009 NORD - National Organization for Rare Disorders, Inc. All rights reserved.

Last modified Thursday, November 05, 2009