The National Organization for Rare Disorders (NORD) over 1200 disease reports

Over 1200 Disease Reports
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• Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,200 diseases.

• Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

• Rare Disease Database

Search this database for reports on more than 1,200 diseases.

View sample report

• Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

• Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office
NORD's Washington OfficeRead about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

 

NORD Board Of Directors, 2009

  • Carolyn Asbury, PhD (Chair)
    Individual

  • Frank Sasinowski (Vice Chair)
    Individual

  • Kimberly Symonds (Secretary)
    Wilson's Disease Association

  • Stephen Bajardi (Treasurer)
    International Rett Syndrome Foundation

Directors At Large

  • Estelle Benson (Guillain Barre Syndrome Fdt. Int'l)
  • Edward R. Boyer (Mercy Medical Airlift)
  • James Broatch (Reflex Sympathetic Syndrome Assoc. of America)
  • Claire Centrella (Dystonia Medical Research Foundation)
  • Brenda Duffy,(Neurofibromatosis, Inc.)
  • Josephine Grima, PhD (National Marfan Foundation)
  • Nancy Harris (Individual)
  • Christopher Jennings (Individual)
  • Emil Kakkis (Individual)
  • Marybeth Krummenacker, (Cystinosis Research Network)
  • Desiree Lyon (American Porphyria Foundation)
  • Mary Sprague, (Dystrophic Epidermolysis Bullosa Research, DeBRA)
  • Judit Ungar (Tourette Syndrome Association)
  • Agnes Varis (Individual)
  • Charlene Waldman, The Paget Foundation: For Paget Disease of Bone and Related Disorders
  • Wendy White, (Siren Interactive Corporation)

Non-Board Members on Committees

  • Sue Levi-Pearl (Ex-officio Non-board Member)

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Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

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Last modified Wednesday, January 20, 2010