The National Organization for Rare Disorders (NORD)

Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,200 diseases.

Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

Rare Disease Database

Search this database for reports on more than 1,200 diseases.

View sample report

Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office

NORD's Washington OfficeRead about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

 

Programs & Services

Medicare/Medicaid Information

The following links will take you to sites that provide important information on Medicare and Medicaid. The new Medicare Prescription Drug program, called Medicare Part D, went into effect Jan. 1, 2006. It is important for people who are eligible for this program to understand how it works. The following web sites may be helpful in explaining the program.

Letter to Mark McClellan, Administrator, Centers for Medicare and Medicaid Services, regarding Draft Transition Process Requirements for Part D Sponsors
March 2006

Letter to Mark McClellan, Administrator, Centers for Medicare and Medicaid Services, regarding Orphan Drug coverage in Medicare Part D forumalaries
January 2006

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Last modified Thursday, August 25, 2005