NORD's
Washington Office
 Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
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Research
Brain Metastases Originating from Breast Cancer
Allos Therapeutics, Inc., is currently conducting a Phase 3 study comparing
the effect of whole brain radiation therapy with supplemental oxygen with or
without the experimental drug EFAPROXYN in women with brain metastases originating
from breast cancer. Enrollment in this study is currently ongoing at several
U.S. cancer centers.
This drug causes red blood cells to make more oxygen available to tumor tissues
in the brain. Research has shown that oxygen-deprived areas of brain tumor are
resistant to radiation, and that radiation therapy may work better when more
oxygen is present in tumors. Information is available at www.allos.com
or by writing to Allos Clinical Affairs at medicalaffairs@allos.com.
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Over 1200 Disease Reports
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Since 1983, working toward the prevention, treatment, and cure of rare
“orphan” diseases.
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Previous Clinical Trials
These studies were listed earlier on this page. Contact the researchers if you would
like to know whether they are still recruiting.
CADASIL
Pelizaeus-Merzbacher Disease
Platelet Disorders
ARVC/ARVD
Immune Thrombocytopenic Purpura
Sturge-Weber Syndrome
Brain Metastases Originating from Breast Cancer
Duplication 12p
Rheumatoid Arthritis/Juvenile Rheumatoic Arthritis, Lupus, Scleroderma or Myositis
Moyamoya Disease
Prader-Willi Syndrome
Larsen Syndrome Registry and Web Site
Primary Liver Cancer
Risk Factors in Autoimmune Disease
Neuroendocrine Unit Studies at MGH
Congenital Lactic Acidosis
Hereditary Angioedema
NINDS Physicians Study Fabry's Disease
Inherited Bone Marrow Failure Disorders
Genzyme Recruiting Patients for Dose Frequency Study
Fabry Disease
Primary Ciliary Dyskinesia
Neurofibromatosis Type I
Primary Lateral Sclerosis
FENIB
Alkaptonuria
Behcet's Disease
Infantile Neuronal Ceroid Lipofuscinosis (INCL)
Turner Syndrome
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