For Patients and Families
NORD Patient Assistance ProgramsNORD offers programs to help patients access certain medications. These include free-drug, co-pay assistance, early and expanded access, emergency access, and travel/lodging assistance. |
NORD Patient Information CenterGet information about rare diseases and helpful resources. Contact NORD's registered nurse or genetic counselor. |
Patient Networking ProgramConnect with other people affected by the same rare disease. |
Online Patient CommunitiesParticipate with others online who care about rare diseases. |
NORD Patient MeetingsMeet face-to-face with others experiencing the same challenges. Share support and information. |
News About Clinical TrialsLearn about research on your rare disease and how to get involved. |
Patient StoriesLearn about living with rare diseases through these patient stories. |
Researcher StoriesMeet some rare disease researchers. |
