Patient Information Center

NORD has a dedicated staff of information specialists to answer your questions about patient resources, networking opportunities, clinical trials and more.  NORD’s Rare Disease Database provides reports in patient-friendly language about more than 1,200 rare diseases.  Search the NORD Organizational Database by disease name to find patient organizations for your disease.  To talk to a NORD Information Center staff member, call (203) 744-0100 or (800) 999-NORD (tollfree) or contact us here.

Ask the Nurse

NORD’s RN provides information about rare diseases and related resources to patients, family members, and others.  If you have questions on topics such as living with a rare disease, caring for a loved one, reimbursement, or accessing needed services, the NORD nurse may be able to help. Ask the nurse.

Ask the Genetic Counselor

NORD’s genetic counselor provides guidance regarding indications for clinical genetic evaluations and genetic testing, answers questions about the genetic basis of diseases, and makes referrals to genetic counseling centers. Ask the genetic counselor.