You are here: Home / For Patients & Families / Patient Information Center

Patient Information Center

NORD has a dedicated staff of information specialists to answer your questions about patient resources, clinical trials and more.  NORD’s Rare Disease Database provides reports in patient-friendly language about more than 1,200 rare diseases.  Search the NORD Organizational Database by disease name to find patient organizations for your disease.

Ask the Genetic Counselor

NORD’s genetic counselor provides guidance regarding indications for clinical genetic evaluations and genetic testing, answers questions about the genetic basis of diseases, and makes referrals to genetic counseling centers.

Physician Database

Help us create a database of physicians who are experts on rare diseases. Submit your medical expert’s name, title, email address, phone number, and mailing address. This database is for our internal use and will not be posted publically. This information helps us identify the specialists who are focused on rare diseases. Additionally, we may call upon the expert to help us review information in their area of expertise. Submit a name here.

Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .