Patient Information Center
NORD has a dedicated staff of information specialists to answer your questions about patient resources, clinical trials and more. NORD’s Rare Disease Database provides reports in patient-friendly language about more than 1,200 rare diseases. Search the NORD Organizational Database by disease name to find patient organizations for your disease.
NORD’s genetic counselor provides guidance regarding indications for clinical genetic evaluations and genetic testing, answers questions about the genetic basis of diseases, and makes referrals to genetic counseling centers.