PNH Regional Meetings
NORD hosts regional PNH meetings at locations across the U.S. for patients and families affected by paroxysmal nocturnal hemoglobinuria (PNH), a rare acquired stem cell disorder. These events are an opportunity for individuals to meet other patients and speak with a medical professional. The meetings provide an opportunity to meet in small groups and gain the encouragement and hope that comes from meeting face-to-face with others affected by the same disease.
Upcoming Meetings
In 2012 NORD will hold a series of PNH meetings around the country. Below is a list of cities and dates.
San Francisco, June 8-9: View the San Francisco brochure
Knoxville, July 13-14: View the Knoxville brochure
Providence, Sept 14-15
Kansas City, Sept 28-29
Princeton, Oct 12-13
San Diego, Nov 2-3
For more information please contact us here.
Past Presentations
Dr. Monica Bessler - Fort Lauderdale
Dr. Gabrielle Meyers - Portland
Dr. Ilene C Weitz - Los Angeles
If you do not have Power Point on your computer, you can download a free viewer here.
