PNH Regional Meetings
NORD hosts regional PNH meetings at locations across the U.S. for patients and families affected by paroxysmal nocturnal hemoglobinuria (PNH), a rare acquired stem cell disorder. These events are an opportunity for individuals to meet other patients and speak with a medical professional. The meetings provide an opportunity to meet in small groups and gain the encouragement and hope that comes from meeting face-to-face with others affected by the same disease.
Information about upcoming NORD meetings will be coming soon. For more information please contact us here.
AA&MDS International Foundation is hosting the following patient conferences:
- Los Angeles, CA: April 5, 2014
- Philadelphia, PA: May 17, 2014
- Louisville, KY: July 26, 2014
- Detroit, MI: September 20, 2014
- New Orleans, LA: October 11, 2014
- Miami, FL: November 18, 2014
Learn more about these meetings here.
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