Disease Information from NORD, National Organization for Rare Disorders, Inc.

Over 1200 Disease Reports
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• Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,200 diseases.

• Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

• Rare Disease Database

Search this database for reports on more than 1,200 diseases.

View sample report

• Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

• Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office
Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

Programs & Services

NORD Resource Guide Now Available Online!

The NORD Resource Guide, a directory of patient organizations and other resources, is now out of print. The most recent edition of this reference book was published in 2005 and may still be available through libraries in your area.

However, updated information on all support groups and other patient organizations from the Resource Guide can be found free on this website. Search NORD's Organizational Database using disease names or organization names to find complete contact information and descriptions for more than 1,400 patient organizations and support groups.

If you are aware of a patient organization that should be in this database, please write to info@rarediseases.org.

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Help NORD improve the lives of people with rare diseases.

Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

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As a member of NORD, you’ll receive benefits in addition to the satisfaction of knowing you’re helping people with rare diseases. Read about our levels of Membership and the benefits of each.

Database Subscriptions

Subscriptions make it possible for institutions, such as libraries, schools, universities, and hospitals, to provide access to all the information in NORD’s databases. Get your subscription today.

Last modified Friday, January 30, 2009