Disease Information from NORD, National Organization for Rare Disorders, Inc.

• Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,150 diseases.

• Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

• Rare Disease Database

Search this database for reports on more than 1,150 diseases.

View sample report

• Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

• Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office
Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

Programs & Services

How to be an Effective Fund-Raiser

Building Local Awareness
A presentation given by Jean Campbell, NORD Vice President for Development, at a Sturge-Weber Foundation Conference in July 2005

Finding the Funding
A presentation given by Jean Campbell at the NORD Annual Conference in 2004

Finding the Funding II
A presentation given by Jean Campbell at the Medtronic Foundation's Patient Link Conference in 2005

ABOUT | CONTACT NORD

Since 1983, working toward the prevention, treatment, and cure of rare “orphan” diseases.

NORD Resource Guide

The new and expanded NORD Resource Guide (5th edition) is now available. It lists more than 1,300 organizations helping people with rare disorders.

Travel Assistance

For information about free or low-cost travel to treatment facilities or sites of clinical studies, NORD refers patients and families to the National Patient Travel Center.

Become a NORD Member

As a member of NORD, you’ll receive benefits in addition to the satisfaction of knowing you’re helping people with rare diseases. Read about our levels of Membership and the benefits of each.

Last modified Wednesday, March 26, 2008