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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Foundation for Ichthyosis & Related Skin Types

a/k/a: FIRST

Address

2616 N Broad Street
Colmar, PA 18915

Phone

215-997-9400

Fax

215-997-9403

800 Number

800-545-3286

TDD

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Email Address

info@firstskinfoundation.org

Website

http://www.firstskinfoundation.org

The Foundation for Ichthyosis & Related Skin Types (FIRST) is a voluntary organization dedicated to helping individuals and families affected by the inherited skin diseases collectively called the ichthyoses. The ichthyoses are a group of rare, inherited disorders characterized by abnormally dry, scaly, thickened skin due to abnormalities in the production of the protein keratin. FIRST provides support, information, education, and advocacy for individuals and families affected by ichthyosis. FIRST supports research into the causes, treatment, and ultimate cure for ichthyosis.

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