You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

National Dissemination Center for Children with Disabilities (DELETED

a/k/a: NICHCY


1825 Connecticut Ave NW, Suite 700
Washington, DC 20009





800 Number




Email Address


The National Dissemination Center for Children with Disabilities (NICHCY) is an information clearinghouse that provides information on disabilities in children, education rights, and disability-related issues. Children up to age 22 are the special focus. NICHCY provides personal responses to questions on early intervention, special education, individualized education programs, and family and transitional issues. At NICHCYs web site,, one can access all of the center's publications, as well as an online listing of national organizations and conferences. . Free and low-cost publications include resource sheets, fact sheets, briefing papers and parent guides.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .