You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Society for Muscular Dystrophy Information International

a/k/a: SMDI International

Address

P.O. Box 7490
Nova Scotia, B4V 2X6
Canada

Phone

902-685-3961

Fax

902-685-3962

800 Number

--

TDD

--

Email Address

smdi@auracom.com

Website

http://www.nsnet.org/smdi/

The Society for Muscular Dystrophy Information International (SMDI) is a non-profit registered Canadian charity dedicated to assisting people in helping themselves by reducing the national and international isolation of individuals and organizations concerned with neuromuscular disorders/disabilities. In general, "neuromuscular disorder" is a term used to describe a group of over 50 diseases affecting the body's motor neurons (nerves and muscles). Symptoms may include varying degrees of progressive muscle weakness and loss of muscle mass (wasting). SMDI was established in 1983 to provide a non-technical information link for individuals with neuromuscular disorders and for organizations around the world; to link people with other people and organizations concerned with their disorder; to share information to assist people in helping themselves; and to create increased public awareness of this group of disorders.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .