The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Spina Bifida and Hydrocephalus Canada
Suite 647-167 av. Lombard Avenue
The Spina Bifida and Hydrocephalus Association of Canada (SBHAC) is a non-profit support organization dedicated to improving the quality of life of individuals with spina bifida and/or hydrocephalus and their families through awareness, education, and research. Spina bifida is a neural tube defect occurring early during fetal development, in which part of one or more of the bones of the spine (vertebrae) fail to develop completely, leaving a portion of the spinal cord exposed and resulting in damage to exposed nerve tissue. Hydrocephalus is a condition in which there is abnormal accumulation of cerebrospinal fluid in the skull, causing increased pressure on the brain. Established in 1981, the SBHAC currently has approximately 2,400 members in 11 chapters throughout Canada. The association provides a variety of programs and services including an 800 Help Line, support networking, educational workshops and seminars, and annual educational conference, research grants, scholarship programs for students with spina bifida and/or hydrocephalus, and public awareness programs. The association also offers a variety of educational guides and materials for schools, professionals, parents, and the general public including fact sheets; articles; a lending library of materials including books, guides, handbooks, and videos; and a regular newsletter entitled "Podium."
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.