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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Twin to Twin Transfusion Syndrome Foundation

a/k/a: TTTSF


National Office
411 Longbeach Parkway
Bay Village, OH 44140



800 Number




Email Address




The Twin to Twin Transfusion Syndrome Foundation (TTTSF) is a national, voluntary, non-profit organization dedicated to providing educational, emotional, and financial support to families, caregivers, and medical professionals before, during, and after pregnancies diagnosed with twin to twin transfusion syndrome (TTTS). Twin to twin transfusion syndrome is a rare disorder that affects identical twins during pregnancy when blood passes unequally from one fetus to the other through connecting blood vessels in their shared placenta. Established in 1989, the foundation is dedicated to educating families, health care professionals, and the general public about TTTS and the latest available treatments. It supports medical research on TTTS and related complications, is working to develop a national registry of all TTTS pregnancies, promotes patient and family advocacy; offers financial assistance through corporate sponsors to affected families who require treatment; and provides a referral network.

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