You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Twin to Twin Transfusion Syndrome Foundation

a/k/a: TTTSF

Address

National Office
411 Longbeach Parkway
Bay Village, OH 44140

Phone

440-899-8887

800 Number

800-815-9211

TDD

--

Email Address

info@tttsfoundation.org

Chapters

12

Website

http://www.tttsfoundation.org

The Twin to Twin Transfusion Syndrome Foundation (TTTSF) is a national, voluntary, non-profit organization dedicated to providing educational, emotional, and financial support to families, caregivers, and medical professionals before, during, and after pregnancies diagnosed with twin to twin transfusion syndrome (TTTS). Twin to twin transfusion syndrome is a rare disorder that affects identical twins during pregnancy when blood passes unequally from one fetus to the other through connecting blood vessels in their shared placenta. Established in 1989, the foundation is dedicated to educating families, health care professionals, and the general public about TTTS and the latest available treatments. It supports medical research on TTTS and related complications, is working to develop a national registry of all TTTS pregnancies, promotes patient and family advocacy; offers financial assistance through corporate sponsors to affected families who require treatment; and provides a referral network.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .