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**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Xeroderma Pigmentosum Society, Inc.

a/k/a: XPS

Address

437 Snydertown Road,
Craryville, NY 12521

Phone

518-851-2612

Fax

--

800 Number

--

TDD

--

Email Address

xps@xps.org

Website

http://www.xps.org/

The Xeroderma Pigmentosum Society (XPS) is a 501(c)(3) not-for-profit charitable organization founded in 1995 by Caren and Dan Mahar, whose youngest daughter, Katie, has xeroderma pigmentosum. The organization is a means to provide the XP family support and information needed to cope daily with XP. The XP Society offers information, support, advocacy, and protection to the XP family, patient and caregiver while promoting research for a cure.

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