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Xeroderma Pigmentosum Society, Inc.
437 Snydertown Road,
Craryville, NY 12521
The Xeroderma Pigmentosum Society (XPS) is a 501(c)(3) not-for-profit charitable organization founded in 1995 by Caren and Dan Mahar, whose youngest daughter, Katie, has xeroderma pigmentosum. The organization is a means to provide the XP family support and information needed to cope daily with XP. The XP Society offers information, support, advocacy, and protection to the XP family, patient and caregiver while promoting research for a cure.
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