The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Children's Hospice International
1101 King Street
Alexandria, VA 22314
The Children's Hospice International (CHI) is a non-profit organization founded in 1983 to promote hospice support through pediatric care facilities; to encourage the inclusion of children in existing and developing hospice, palliative, and home care programs; and to include the hospice perspectives in all areas of pediatric care, education and the public arena. Consisting of 400 members, CHI supports several program activities including a national telephone hotline assisting children with life-threatening conditions and their families and healthcare providers; a web site with a national and international searchable database (in 2003); 14 world congresses; and a federally funded CHI Program for All-inclusive Care for Children and their families, a demonstration program being implemented in over six states with technical assistance from the Centers for Medicare & Medicaid Services.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.