You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Children's Hospice International

a/k/a: CHI

Address

1101 King Street
Suite 360
Alexandria, VA 22314
USA

Phone

703-684-0330

Fax

703-684-0226

800 Number

800-242-4453

TDD

--

Email Address

info@chionline.org

Website

http://www.chionline.org

The Children's Hospice International (CHI) is a non-profit organization founded in 1983 to promote hospice support through pediatric care facilities; to encourage the inclusion of children in existing and developing hospice, palliative, and home care programs; and to include the hospice perspectives in all areas of pediatric care, education and the public arena. Consisting of 400 members, CHI supports several program activities including a national telephone hotline assisting children with life-threatening conditions and their families and healthcare providers; a web site with a national and international searchable database (in 2003); 14 world congresses; and a federally funded CHI Program for All-inclusive Care for Children and their families, a demonstration program being implemented in over six states with technical assistance from the Centers for Medicare & Medicaid Services.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .