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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
National Ataxia Foundation
a/k/a: NAF
Address
2600 Fernbrook Lane Suite 119
Minneapolis, MN 55447
USA
Phone
763-553-0020
Fax
763-553-0167
800 Number
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TDD
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Email Address
naf@ataxia.org
Chapters
49
Website
The National Ataxia Foundation (NAF) is a national, non-profit organization that seeks to identify people with hereditary ataxia and to improve the physical and emotional well being of affected individuals and their families. Hereditary ataxia is a group of progressive, chronic neurological disorders that affect coordination. Established in 1957, the National Ataxia Foundation encourages and supports research to identify the causes and mechanisms of the hereditary ataxias, improve diagnosis, and develop treatment models. It also locates families affected by ataxia or at risk for ataxia in order to offer information and education; identifies needs and services for purposes of referral; creates and makes available educational programs for ataxia families, healthcare professionals, and the general public; and increases public awareness of hereditary ataxia. In addition, the National Ataxia Foundation provides informational materials, counseling, referrals, and avenues to support groups and is responsive to the needs of its membership by achieving an acceptable balance among the funding of the various programs of education/awareness, patient services, research, administration, and fund-raising. The organization produces informational materials including brochures on hereditary ataxia, financial planning, and health insurance issues.
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