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National PKU News

a/k/a: NPKUN


6869 Woodlawn Avenue NE #116
Seattle, WA 98115-5469





800 Number




Email Address


The National PKU News (NPKUN) is a non-profit organization devoted to providing news and information to all persons involved in the treatment of phenylketonuria (PKU). This is a rare metabolic disorder caused by a deficiency of the liver enzyme phenylalanine hydroxylase. Phenylketonuria is a severe progressive disorder that, if not treated early, can produce mental retardation. Founded in 1989, National PKU News publishes a newsletter three times a year and has approximately 2,000 subscribers from the United States, Canada, and 30 foreign countries. National PKU News also publishes educational materials regarding treatment of PKU. Food lists and cookbooks are also distributed by the organization.

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