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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Reach Out for Youth with Ileitis and Colitis, Inc.

a/k/a: ROFY


PO Box 857
Bellmore, NY 11710



800 Number




Email Address




The Reach Out for Youth with Ileitis and Colitis, Inc., is a non-profit support organization dedicated to assisting families whose children have inflammatory bowel disease (IBD) such as ileitis or colitis. Ulcerative colitis is an inflammatory disease of the large intestine and is characterized by diarrhea, abdominal pain, fever, and bleeding from the rectum. Decreased appetite and weight loss may also occur. Ileitis or Crohn's disease, also an inflammatory bowel disorder, can affect any portion of the digestive system and has symptoms that are similar to those of colitis. Established in 1979 and consisting of approximately 400 members, the organization has helped hundreds of families cope with the effects of IBD. The group's goals include providing educational materials and emotional support to affected individuals and their families and organizing fundraising efforts to promote research into the causes and treatment of IBD. Educational seminars and a quarterly newsletter entitled "Inner Circle" assist members by keeping them informed of current activities. A hotline offers interested individuals the opportunity to communicate on a one-to-one basis, especially when acute symptoms are present. Reach Out also continues to support the IBD clinical database established 13 years ago as a crucial research tool. Our educational brochure, "The Inside Story" is available upon request.

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