You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Rubinstein-Taybi Parent Group

a/k/a: RTPG


P.O. Box 146
Smith Center, KS 66967-0146



800 Number




Email Address


The Rubinstein-Taybi Parent Group (RTPG) is a voluntary, non-profit, self-help organization that is dedicated to providing information, assistance, and support to parents, healthcare professionals, and others who care for children with Rubinstein-Taybi syndrome (RTS). Established in 1984, the Rubinstein-Taybi Parent Group provides a list of families affected by this disorder for the purpose of mutual support and information exchange. In addition, the group works with individuals, families, and various organizations around the world to help them start RTS support groups; and promotes and supports research on RTS. The organization provides a variety of educational and support materials, including a directory, a periodic newsletter, brochures, and pamphlets. The group also informs members about research being conducted on Rubinstein-Taybi syndrome and timely journal articles published in the peer-evaluated medical literature.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .