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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Rubinstein-Taybi Parent Group
a/k/a: RTPG
Address
P.O. Box 146
Smith Center, KS 66967-0146
USA
Phone
785-697-2989
800 Number
888-447-2989
TDD
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Email Address
lbaxter@ruraltel.net
Website
http://www.rubinstein-taybi.org
The Rubinstein-Taybi Parent Group (RTPG) is a voluntary, non-profit, self-help organization that is dedicated to providing information, assistance, and support to parents, healthcare professionals, and others who care for children with Rubinstein-Taybi syndrome (RTS). Established in 1984, the Rubinstein-Taybi Parent Group provides a list of families affected by this disorder for the purpose of mutual support and information exchange. In addition, the group works with individuals, families, and various organizations around the world to help them start RTS support groups; and promotes and supports research on RTS. The organization provides a variety of educational and support materials, including a directory, a periodic newsletter, brochures, and pamphlets. The group also informs members about research being conducted on Rubinstein-Taybi syndrome and timely journal articles published in the peer-evaluated medical literature.
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