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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
National Sarcoidosis Resource Center
a/k/a: NSRC
Address
P.O. Box 1593
Piscataway, NJ 08855-1593
Phone
732-699-0733
Fax
732-699-0882
800 Number
--
TDD
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Email Address
sconroy846@aol.com
Website
The National Sarcoidosis Resource Center is an international, non-profit organization dedicated to providing support and information to individuals affected by sarcoidosis, their families, and any interested individuals. Sarcoidosis, a rare multisystem disorder of unknown cause, is characterized by the abnormal formation of inflammatory masses or nodules (granulomas) consisting of certain granular white blood cells (modified macrophages or epithelioid cells) in certain organs of the body. The granulomas that are formed are thought to affect the normal structure and, potentially, functions of the affected organ(s), causing symptoms associated with the particular body system(s) in question. Such granuloma formation most commonly affects the lungs. However, in many cases, other organs may be affected. Established in 1992 by an individual with sarcoidosis, the National Sarcoidosis Resource Center provides information to people throughout the United States, Canada, and Europe. It maintains a registry of more than 15,000 affected individuals; provides referrals to physicians; assists in the formation of self-help groups; coordinates a networking program; and holds an annual "Sarcoidosis Awareness Day Celebration." In addition, the center conducts on ongoing study of the symptoms and demographics of individuals with sarcoidosis.
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