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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

National Sjogren's Syndrome

Address

Box 147
Svedala, 233 23
Sweden

Phone

046-255-925

800 Number

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TDD

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Email Address

harry.paulnitz@telia.com

Website

http://www.sjogrensyndrom.se

The National Sjogren's Syndrome is an international, non-profit organization dedicated to providing information and support to individuals with Sjogren's syndrome, family members, and healthcare professionals. Sjogren's syndrome, a disorder of unknown cause, is characterized by deficient moisture production of the mucous-secreting glands, particularly the tear ducts of the eyes (lacrimal) and the salivary glands of the mouth. Associated symptoms and physical abnormalities may include abnormal dryness, itching, and burning of the eyes (keratoconjunctivitis sicca); abnormal dryness of the mouth, resulting in cavities, other dental disorders, and loss of odor and taste sensations; and, when the lungs are affected, increased susceptibility to repeated respiratory infections. Many affected individuals also experience rheumatoid arthritis. Sjogren's syndrome, which primarily affects middle-aged women, is thought to be due to an abnormal autoimmune response. Established in 1989, the Swedish Sjogren's Syndrome Association provides networking opportunities, engages in patient education, and offers a variety of materials including reports and a regular newsletter. It has a web site in both English and Swedish that explains the history of Sjogren's syndrome, discusses current research in Sweden and around the world, and offers dynamic linkage to other helpful sources of information on the Internet.

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